The Alliance is a non-profit local solution-oriented think-tank chaired by Opal Webster-Philp working in partnership with university professors, researchers and medical professionals including complementary therapists and other stakeholders to build awareness, educate others, correct misunderstanding or misinformation and to share new and current up-to-date scientific evidence, and factual information that is currently emerging.

 

What are our aims?

    • To develop awareness and understanding of ME/CFS and associated conditions, e.g. Fibromyalgia, Gulf War Syndrome, Post Traumatic Stress Disorder and possibly now Long-Covid.
    • To encourage and support biomedical research, clinical excellence through dialogue and good communication across specialist medical scientific areas.
    • To work in partnership with clinicians, researchers and medical professionals and other stakeholders to develop a patient-centred approach and service.
    • To support a multi-disciplinary and inclusive approach by encouraging, facilitating, educating and training all the relevant medical and complementary professionals and the public where appropriate.
    • To pursue answers to hidden and undisclosed pieces of information.
    • To make sense of the inherited complexities and experiences of living with the condition ME/CFS.
    • To write a solution oriented book which joins up the confusing, fragmented aspects of the condition and thereby creating a more unified coherent narrative that can be better understood by all.
We hope you understand that we can’t respond to individual questions or concerns about ME/CFS. If you need further information or support, please contact…

The main National Charities:

ME Association:

Telephone: 01280 818963 weekdays, between 9.30am and 3.00pm.

https://meassociation.org.uk

Address: The ME Association, 7 Apollo Office Court, Radclive Road, Gawcott, Bucks, MK18 4DF

Action for ME:

Telephone: 0117 927 9551 (10am to 5pm Monday to Friday)

https://www.actionforme.org.uk

Action for ME, 42 Temple Street, Keynsham, BS31 1EH